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About health data
What is Health Data?
What is health data used for and by who?
How is health data kept safe?
How could citizens be involved in health data reuse?
What are Health Data Spaces?
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Health data and COVID 19
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What should your health data be reused for?
Our data should be used to improve respiratory HCP-patient communication, co-decision making and building on patient reported outcomes (PROs).
Isabel P. from European Federation of Allergy and Airways Diseases Patients' Associations
about 1 year ago
Other entries
Each time we share data or not, allow our data to be used or not, use data or not, we are making decisions for ourselves, for other people, and contributing to the norms and expectations of privacy in society. This extends from clicking accept on a cookie through to designing national strategies.
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The COVID-19 pandemic has highlighted the many benefits of sharing data, where new models of collaboration and pooling of information has been critical from diagnostic, preventative, and treatment perspectives.
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