The Healthy Data project reserves the right to change the privacy statement at any time. In this case, we will inform you beforehand.
Anyone can view the content on the online platform and take part in the online test. If you want to submit a proposal or an idea, post a comment or support published ideas, you will need to create an account.
You can create an account as an individual or as an organisation. Are you registering as a group or an association? Then we assume that you speak on behalf of that group or association.
Below we will explain the different situations in which we collect data from you, and what we do with that data and why.
If you post a public contribution
To be able to post a public contribution such as an idea, proposal, photo or comment on the platform, you first need to create an account. Therefore you have to provide us with the following information: your first name, your last name, your email address, your age (range), your gender, your level of education and your country of location. This information is recorded and linked to your profile.
Once you have created your account, you will receive an email to confirm your registration. You may also receive an email in which we ask you to provide more information about your submitted idea. If you post a contribution, we will notify you by email whether it has been published or not.
Your contribution, idea or comment will appear on the platform along with your first name and the first letter of your last name (e.g. Peter P). If you register as an organisation, the full name of your organisation will also appear (e.g. Peter P from The Football Team).
If you subscribe to the newsletter
If you subscribe to the newsletter, we will keep you informed about the next stages of the project. In every email you will have the chance to opt-out of receiving those newsletters. We will send you monthly emails to:keep you informed about health data reuse and the European Health Data Space;
If you take part in the online test
If you participate solely in the online test, we will not ask you to provide any personal details.
Shared data via connected social media
If you want to post on social media from the platform, you first have to log in to the relevant social network. That social network is then responsible for the data you have to provide. The Healthy Data project only records that you have shared the contribution and through which social network.
Under no circumstances can the Healthy Data project be held responsible for the data that social network providers such as Google, Facebook or Twitter collect about you.
Shared data through the use of the platform
When you use the platform, our servers automatically record data that your web browser sends us when you visit a website (“Log Data”). This information includes, for example, the browser you are using, your IP address and the search terms used.
If you interact with a contribution on the platform, we have access to data that identifies the reach and scope of the contribution (e.g., clicks, likes, shares, etc.).
We use functional cookies to guarantee the proper functioning of the platform. We do not use analytical cookies.
If you request help and support
If you contact us with a question or a comment, you are largely in control of what information we receive from you. For example, you can send us an email in which you also include your Twitter account, professional address or a photo.
If children or adolescents under the age of 15 want to participate in Healthy Data, they can do so indirectly through the registration of a person who has the right to exercise parental authority over the child or adolescent in question. If it becomes clear that we have collected personal data which has been provided without parental consent, we will remove the personal data from our files as soon as possible.
We also may use your personal data for some or all of the following reasons:
Personal data will be processed based on your informed consent.
The anonymised and aggregated version of the personal data, as well as the answers which you provided during the interactive test and on the ideation platform will be used for the following purposes :
We will not pass on your personal data to third parties, unless we receive your specific, explicit permission to do so. In some cases, however, the law requires us to disclose your information to the competent authorities.
We secure the data in a responsible manner, taking into account current practices and expectations. However, no system or platform is infallible. If you suspect that your information is being misused, please contact us immediately by sending an email to firstname.lastname@example.org.
The Healthy Data project does not store your personal data any longer than necessary, taking into account the need to answer questions and solve problems, to improve services and offer new services, and to comply with legal requirements. We keep the data until 5 years after the end of the Healthy Data project, at the latest.
Do you have any questions or comments about this privacy statement or the way in which we collect personal data? Do you want to exercise one or more of your rights? Then please send an email to email@example.com