Creation of patient records across services
health data should be used for supervision and planning
For trusted purposes and agencies
Patient understanding of the general uses and have consented.
Clarity on timings on engagement so health service can plan and suport
Not how care.data did it!
Currently researchers and their respective organisations are not equally supported across all sectors to navigate the regulatory landscape and this often impedes timely access to data.
Skills needs to include not only data use practices, not only data protection practices, but critical data practices. Essential skills include awareness of broader data ecosystems, how that fits [...]