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14-10-2022 Since the publication of our interim report outlining the 6,000 contributions collected from citizens, the Healthy Data team has organised a ser [...] Read more
22-09-2022 Over the last few days, the Healthy Data team has conducted three national workshops in the participating countries of the project, namely Franc [...] Read more
01-09-2022 Next steps of the Healthy Data consultation Last month, we finally published our report with our analysis of the 6.000 contributions we gathere [...] Read more
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07-07-2022 Participation to our consultation has ended. Between December 2021 and May 2022, our platform received more than 24,500 visits and we collected [...] Read more
21-06-2022 Following their partnership on health data and their commitment to improve the participation of civil society, the Health Data Hub and France As [...] Read more
13-05-2022 On Wednesday 25 May 2022, we organize a Healthy Data discussion evening in Ghent (Belgium)!This will give you the opportunity to discuss your id [...] Read more
04-04-2022 The collection of health data (blood glucose levels and treatments), initially an analog (manual?) process which was later digitised, has always [...] Read more
09-03-2022 The Healthy Data team is supported and accompanied by specialists through an advisory group selected on the basis of an open call. Indeed, the p [...] Read more
25-02-2022 The 28th of February marks the 14th edition of the international awareness campaign for rare diseases. It is estimated that 300 million people w [...] Read more
04-02-2022 Whenever we go to a doctor or a hospital, they collect data about us, our health and our lifestyle. This is recorded and stored in our patient r [...] Read more
18-01-2022 In the age of digital communication, more and more data is being collected. This technological opportunity can bring considerable benefits, also [...] Read more
08-11-2021 The Astrodem study uses techniques developed for studying galaxies to analyse GP data, looking for the early warning signs of dementia. It is ho [...] Read more
08-11-2021 Around 2 in every 1,000 children in the UK have severe vision impairment in both eyes. Studies on national data showed for the first time that r [...] Read more
08-11-2021 The STarT Back screening tool uses patient data to help doctors work out the chances of someone with back pain going on to develop a long term d [...] Read more
08-11-2021 Cancer treatment for children and young adults can be delivered at a local hospital or at a principal treatment centre. This project investigate [...] Read more
08-11-2021 By linking three separate sets of data, this research showed that it is common for people to stop taking a recommended anti-clotting drug once t [...] Read more
08-11-2021 The Randomised Evaluation of COVid-19 thERapY (RECOVERY) Trial was set up to identify effective treatments that improve outcomes for people in h [...] Read more
08-11-2021 Patient data is critical to establishing the risks and benefits of treatments. In this case, there is some evidence that a drug prescribed for d [...] Read more