Two years after its launch, the Healthy Data project is coming to an end. Over the last few months, our team has been working on our final deliverable within the TEHDAS project: 12 recommendations for the European Commission relaying citizens' key values about
These recommendations were built on the nearly 6000 contributions you have shared on our platform and through our interactive quiz, as well as on other preliminary work and stakeholders’ inputs provided through 4 workshops conducted after the publication of the consultation’s results. They also took into account the current legislative proposal for a European Health Data Space, released by the European Commission last year.
Following the publication of this final report on the TEHDAS website, the European Commission will have knowledge of and access to this document. This is an opportunity to make the values of citizens heard at the genesis of the European Health Data Space. In parallel, our team will conduct a communication and dissemination campaign of the recommendations to all partners who have been involved at some point in the project, as well as to additional policy makers. You can always follow us on the channels shared below:
Sciensano (Belgium): Twitter LinkedIn
Health Data Hub (France): Twitter LinkedIn
Understanding Patient Data (UK): Twitter Youtube
Although our team members will no longer be directly involved in the TEHDAS project, we happily remain available to answer your questions and keep the dialogue open.
Health Data Hub: firstname.lastname@example.org
NHS Confederation: James.Maddocks@nhsconfed.org
Follow Robert and his health data on their trip. How does Robert's health data move along with him? And how can his health data be reused?
08-11-2021 The Astrodem study uses techniques developed for studying galaxies to analyse GP data, looking for the early warning signs of dementia. It is ho [...] Read more
04-02-2022 Whenever we go to a doctor or a hospital, they collect data about us, our health and our lifestyle. This is recorded and stored in our patient r [...] Read more