Our series of workshop ended: 150 European stakeholders came to help us build our final recommendations based on citizens' contributions

Since the publication of our interim report outlining the 6,000 contributions collected from citizens, the Healthy Data team has organised a series of workshops to meet national and European stakeholders. Our aim was to discuss the secondary use of health data in-depth and to get their feedback on the citizens' contributions in order to better delineate the main areas to focus on and to clarify the best way to develop our future recommendations. More information on the national workshops is available here.

The European workshop was organised in a hybrid format at the Hungarian Permanent Representation in Brussels. More than 50 stakeholders participated in the face-to-face workshop, and more than 100 followed us online. Once again, we would like to express our gratitude to the members of the Permanent Representation for hosting us, as well as to all stakeholders for participating in person and online.

How did the workshop go?

During the two-hour workshop, participants were given an overview of the European Commission's proposal for a European Health Data Space, the TEHDAS joint action and the process followed to conduct the Healthy Data consultation and its main outcomes. We then presented them with several statements from the citizens' contributions, organised under three main themes: benefits, conditions and citizens' engagement regarding the secondary use of health data. Both online and in person, participants were able to vote on the statements, write their comments in the chat room, or intervene directly if they were present. The discussion hold during the workshop was very fruitful, thanks to the multiple interventions and comments received from the audience.

For more information: 

• Find the slides here,
• Access the recording here
• Read the summary of the discussion here

And now? 

We are now in the final phase of our project, and will start writing our final deliverable for the European Commission on how to raise awareness and engage citizens in the future European Health Data Space.