The national workshops are over! Discover our first results!
Over the last few days, the Healthy Data team has conducted three national workshops in the participating countries of the project, namely France, Belgium and the UK. On this occasion, we were able to present the main results of the consultation to the national stakeholders of the health data eco-system in each country, such as digital experts, health professionals, researchers, patient associations and civil society actors. In total, nearly one hundred stakeholders attended the three consecutive workshops. We would like to thank all the participants for taking the time to listen, discuss and contribute during the workshop.
What did we discuss?
We had the opportunity to discuss different major themes in order to feed our reflection on the recommendations we will elaborate for the European Commission on citizens' engagement in the future European Health Data Space. These main themes were the following:
- Conceptual framework: how can citizens' conceptions of health data influence the framework for their re-use?
- Collaboration: how to treat citizens as equal partners in the re-use of health data? What roles do different stakeholders play and how can we maximise collaboration?
- Trust and beneficence: how to foster trust and beneficence of citizens towards health data reuse (safeguards, actions, information...)?
In order to have a more detailed idea of the content of the discussions held during these workshops, you can consult the summaries made for each workshop below:
Where do we go from here?
The results of our consultation and the points highlighted during these national workshops have been presented to European stakeholders during a hybrid European workshop organized at the Hungarian Permanent Representation in Brussels on 11 October. More information on the European workshop here.