We need health data to prevent and cure diseases more effectively. The goal of the Joint Action Towards the European Health Data Space (TEHDAS) is that in the future, in Europe, people, communities and companies will benefit from secure and seamless access to health data regardless of its location.
The purpose of TEHDAS, is more specifically to help in developing the European Health Data Space. It supports the work of the 25 European countries involved in the projects to facilitate the use of health data for improving health, care and services through research and planning.
Your contributions to the e-consultation platform will contribute directly to the TEHDAS and AHEAD's projects. The project started in February 2021 and will run until August 2023. The project is funded by the EU and the European countries involved. Would you like to know more about the project? Please visit the project website: https://tehdas.eu/
The Belgian initiative Towards the development of a National Health Data Platform (AHEAD) aims to facilitate the scientific valuation of health data already existing within the Belgian health information system and to provide an active push towards the development of a national health data platform. One of AHEAD’s core missions is to identify legal, technical and ethical bottlenecks that hamper the linkage, reuse and scientific exploitation of health data and this in consultation with the Belgian citizens.
Wellcome Sanger Institute
The Wellcome Sanger Institute is a world leader in genome research that delivers insights into human and pathogen biology that change science and medicine. As part of the EU Joint Action "Towards the European Health Data Space" (TEHDAS), the Wellcome Sanger Institute supports the NHS Confederation in their role as the UK national representative.
Understanding Patient Data
Understanding Patient Data aims to make the uses of patient data more visible, understandable and trustworthy, for patients, the public and health professionals. They work with patient groups, charities, national health service organisations and policymakers to bring transparency, accountability and public involvement to the way patient data is used.
France Assos Santé
France Assos Santé is the name chosen by the National Union of Registered Associations of Health System Users (l’Union nationale des associations agréées d’usagers du système de santé - UNAASS) to publicise its activities as the organisation of reference representing and defending the interests of patients and health system users in France. With a mission officially recognised by its inclusion in the public health code via the law of 26 January 2016, France Assos Santé was created in March 2017 building on more than 20 years of advocacy aimed at establishing and gaining recognition for robust interassociative user representation. Bringing together several hundred national and regional associations, France Assos Santé is driven by the desire to move patient and healthcare user associations from representation to full participation, in order to become a force for proposals and to take their share of responsibility in the construction of tomorrow's health system. France Assos Santé is convinced that patient and healthcare user associations must take hold of the use of digital technology in health in order to influence the evolution of the health system.