Healthy Data
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Healthy Data
  • About health data
    • What is Health Data?
    • What is health data used for and by who?
    • How is health data kept safe?
    • How could citizens be involved in health data reuse?
    • What are Health Data Spaces?
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    Our series of workshop ended: 150 European stakeholders came to help us build our final recommendations based on citizens' contributions

    14-10-2022 Since the publication of our interim report outlining the 6,000 contributions collected from citizens, the Healthy Data team has organised a ser [...] Read more

  • News
    The national workshops are over! Discover our first results!

    22-09-2022 Over the last few days, the Healthy Data team has conducted three national workshops in the participating countries of the project, namely Franc [...] Read more

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    From citizens' perspectives to policy recommendations

    01-09-2022 Next steps of the Healthy Data consultation Last month, we finally published our report with our analysis of the 6.000 contributions we gathere [...] Read more

  • News
    Our report is out!

    07-07-2022 Participation to our consultation has ended. Between December 2021 and May 2022, our platform received more than 24,500 visits and we collected [...] Read more

  • News
    Citizen participation at the heart of the Healthy Data debate!

    21-06-2022 Following their partnership on health data and their commitment to improve the participation of civil society, the Health Data Hub and France As [...] Read more

  • News
    Healthy Data - Discussion Evening in Ghent (BE)

    13-05-2022 On Wednesday 25 May 2022, we organize a Healthy Data discussion evening in Ghent (Belgium)!This will give you the opportunity to discuss your id [...] Read more

  • News
    Patients and health data: uses and perspectives - French Federation of Diabetics

    04-04-2022 The collection of health data (blood glucose levels and treatments), initially an analog (manual?) process which was later digitised, has always [...] Read more

  • News
    Find here the position paper co-signed by our experts

    09-03-2022 The Healthy Data team is supported and accompanied by specialists through an advisory group selected on the basis of an open call. Indeed, the p [...] Read more

  • News
    Act on Rare Disease Day 2022!

    25-02-2022 The 28th of February marks the 14th edition of the international awareness campaign for rare diseases. It is estimated that 300 million people w [...] Read more

  • News
    Act on World Cancer Day 2022!

    04-02-2022 Whenever we go to a doctor or a hospital, they collect data about us, our health and our lifestyle. This is recorded and stored in our patient r [...] Read more

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    NEW VIDEOS!

    18-01-2022 In the age of digital communication, more and more data is being collected. This technological opportunity can bring considerable benefits, also [...] Read more

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  • James.Maddocks@nhsconfed.org
Learn more
  • Health data and COVID 19
  • Discover Robert's story
  • We are Health project
  • For teachers
About the project
  • The project
  • The team
  • Partners
  • Charter of use
  • Privacy
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About health data
  • What is health data?
  • What is health data used for and by who?
  • How is health data kept safe?
  • How could citizens be involved in health data reuse?
  • What are Health Data Spaces?
News
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